CONNECTING TO FIGHT THOSE WINTER BLUES!Support & Friendships in Lymphedema

Through the years of working with lymphedema clients, I’ve met several people on this lymphedema journey who felt isolated and alone at one time or another. Have you ever felt that way? Could you use a little support for your lymphedema? Winter can be awful, being it’s harder to get out. Many of my customers didn’t know anyone like them who had a huge leg or a giant hand, and they felt different, isolated, and alone. Lymphedema can take an emotional toll on a person. That may have been the case at one time, but this no longer has to be the story. Social media and the internet itself have changed this all up in a big way and provide a good deal of support for lymphedema.


From Facebook to Instagram to YouTube to podcasts, there is a whole world of information and connection. I wanted to share some of my favorites with you today. You no longer have to feel isolated, especially in these cold winter months. A loving, supportive group is just waiting for you to reach out! Connecting is a fabulous way to fight those winter blues! Here are a few inspirational, positive, and inspiring people you should get to know!

Amanda Sobey lymphedema AMANDA SOBEY

My friend Amanda Sobey always says, “We’re stronger together.” So let’s start with Amanda, who wants to “help you be the best you can be”! Amanda provides coaching, education, fitness, and support. She’s a certified fitness trainer who’s gone through her own lymphedema journey to create optimal health and wellness. Positive and inspirational, Amanda is a wealth of information and knowledge. What I like best about her is that she meets you where you are. Her philosophy revolves around taking small steps to make significant changes. Check out her website or join her on Instagram @am.sobey for inspiration and support. You are not alone!


Amy Rivera wants to motivate and challenge you to become an ambassador for lymphedema. Founder of Ninjas Fighting Lymphedema, Amy wants to help you win the fight against lymphedema. The organization’s mission is to bring hope and a voice to everyone fighting lymphedema, and she’s created a growing community of survivors and thrivers who refuse to let a diagnosis slow them down or define them. The new 21-Day Ninja Challenge is a commitment to prioritizing your health. You’ll focus on movement, education, nutrition, and keeping inspired throughout your wellness journey. Amy helps you to focus on your entire well-being during this challenge, not just your lymphedema. Private access to the Facebook group, weekly check-ins, live cooking sessions, and much more! Are you up for the challenge? If not, and you would like to get some positive inspiration, check out Amy’s Instagram account @thrivewithamy.

Alexa Ercolano a lympie lifeSTAYING ELEVATED WITH ALEXA

Are you looking for resources and more information, a podcast, or even a lymphedema therapist? Check out my friend Alexa Ercolano’s website, “The Lymphie Life.” Alexa has primary lymphedema, even though she was not correctly diagnosed until her teens. Alexa has lived with lymphedema her entire life. To help her deal with this chronic condition, she created her webpage. You’ll find fellow lymphedema bloggers, treatment providers, patient advocacy groups, and medical suppliers here. Find a wealth of information, experiences, and support within this online lymphedema community! Knowledge is power; check out this invaluable resource. You can also find Alexa on Instagram @lymphielife.


These are just a few of my favorites, but many others are out there! Here are a few others I would highly recommend:


Working with lymphedema therapists and the patients they treat for over a dozen years now, I have met some of the kindest, most compassionate people I have ever known. Reach out this winter because you are not alone. Let this community embrace and support you. One step at a time, working together to survive and thrive.

Do you have any favorite inspirational influencers that you follow?

Please share in the comments; let’s get those connections started.

We are Stronger Together!Support for lymphedema

Disclaimer: This blog is for general information purposes only. Furthermore, the information contained in this blog is not a substitute for medical advice – always consult a licensed healthcare professional for advice on your specific condition. 

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