Support for lymphedemaDO YOU FEEL ISOLATED?

I’ve met several people on this lymphedema journey who at one time or another felt isolated and alone. They didn’t know anyone like them who had a large leg or a giant hand, they felt different, isolated and alone. Well that may have been the case at one time, but this no longer has to be the story. I believe social media and the internet itself has changed this all up in a big way and provides a good deal of support for lymphedema.


From Facebook to Instagram to YouTube to podcasts there is a whole world of information and connection out there for the taking. I thought I would use this blog post to share some of my favorites with you. You no longer have to feel isolated and alone! There is a loving, supportive group just waiting for you to reach out!


Like my friend Amanda Sobey always says, “We’re stronger together.” So let’s start with Amanda who wants to “help you be the best you can be”! Through coaching, education, fitness and support, Amanda is there for you. She’s a certified fitness trainer who’s gone through her own lymphedema journey to create optimal health and wellness. Positive and inspirational, she is a wealth of information and knowledge. Check out her website or join her on social media for inspiration and support. You are not alone!


Amy Rivera wants to motivate and challenge you to become an ambassador for lymphedema. Founder of Ninjas Fighting Lymphedema, Amy wants to help you win the fight against lymphedema. The organization’s mission is to bring hope and a voice to everyone fighting lymphedema, and she’s created a growing community of survivors and thrivers who refuse to let a diagnosis slow them down. The new 21-Day Ninja Challenge is a commitment to making your health a priority. You’ll be focusing on movement, education, nutrition and of course keeping inspired throughout your wellness journey. We want to focus on your entire well-being during this challenge. Private access to the Facebook group, weekly check-ins, live cooking sessions, and much more! Are you up for the challenge?

Alexa ercolano, the lympie lifeSTAYING ELEVATED WITH ALEXA

Are you looking for resources and more information, maybe a podcast or even a lymphedema therapist? Check out my friend Alexa Ercolano’s website “The Lymphie Life.” Alexa has primary lymphedema and even though she wasn’t properly diagnosed until her teens, she has been living with lymphedema all her life. To help her deal with this chronic condition she created her webpage. Here you’ll find fellow lymphedema bloggers, treatment providers, patient advocacy groups, and medical suppliers. Find a wealth of information, experiences, and support within this online lymphedema community! Knowledge is power, check out this invaluable resource.


I personally have been involved in the lymphedema world for twelve years now, working with therapists, as well as the patients they treat. I have meant some of the kindest, most compassionate people I have ever known through this chronic disease. Reach out, because you are not alone. Let this community embrace and support you. One step at a time, working together, to not only survive but to thrive.

Support for lymphedema

Stronger Together!


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