Support for lymphedemaDO YOU FEEL ISOLATED?

I’ve met several people on this lymphedema journey who felt isolated and alone at one time or another. They didn’t know anyone like them who had a large leg or a giant hand, and they felt different, isolated, and alone. Lymphedema can take an emotional toll on a person. That may have been the case at one time, but this no longer has to be the story. I believe social media and the internet itself have changed this all up in a big way and provide a good deal of support for lymphedema.


From Facebook to Instagram to YouTube to podcasts, there is a whole world of information and connection. So I thought I would share some of my favorites with this blog post. You no longer have to feel isolated and alone! A loving, supportive group is just waiting for you to reach out!


My friend Amanda Sobey always says, “We’re stronger together.” So let’s start with Amanda, who wants to “help you be the best you can be”! Amanda is there for you through coaching, education, fitness, and support. She’s a certified fitness trainer who’s gone through her lymphedema journey to create optimal health and wellness. Positive and inspirational, she is a wealth of information and knowledge. Check out her website or join her on social media for inspiration and support. You are not alone!


Amy Rivera wants to motivate and challenge you to become an ambassador for lymphedema. Founder of Ninjas Fighting Lymphedema, Amy wants to help you win the fight against lymphedema. The organization’s mission is to bring hope and a voice to everyone fighting lymphedema, and she’s created a growing community of survivors and thrivers who refuse to let a diagnosis slow them down. The new 21-Day Ninja Challenge is a commitment to prioritizing your health. You’ll focus on movement, education, nutrition, and keeping inspired throughout your wellness journey. We want to focus on your entire well-being during this challenge. Private access to the Facebook group, weekly check-ins, live cooking sessions, and much more! Are you up for the challenge?

Alexa ercolano, the lympie life


Are you looking for resources and more information, maybe a podcast or even a lymphedema therapist? Check out my friend Alexa Ercolano’s website, “The Lymphie Life.” Alexa has primary lymphedema, and even though she wasn’t correctly diagnosed until her teens, she has lived with lymphedema all her life. To help her deal with this chronic condition, she created her webpage. You’ll find fellow lymphedema bloggers, treatment providers, patient advocacy groups, and medical suppliers here. Find a wealth of information, experiences, and support within this online lymphedema community! Knowledge is power; check out this invaluable resource.


Working with therapists and the patients they treat for over 12 years, I have met some of the kindest, most compassionate people I have ever known through this chronic disease. Reach out because you are not alone. Let this community embrace and support you. One step at a time, working together to survive and thrive.

Support for lymphedema

Stronger Together!

Disclaimer – This blog is for general information purposes only. Furthermore, the information contained in this blog is not intended as a substitute for medical advice – always consult a licensed healthcare professional for advice on your specific condition. Any reliance you place on this information is at your own risk.


Leave a Reply

Your email address will not be published. Required fields are marked *

You may use these HTML tags and attributes:

<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>