Primary Lymphedema

BORN WITH LYMPHEDEMA

March is Lymphedema Awareness Month! So let’s bring more awareness to this chronic and progressive disease. I want to introduce you to Hardeep. She has primary lymphedema, which means she was born with a lymph system that was compromised in some way. Hardeep was six months old and diagnosed with primary lymphedema in her arm and hand. Lucky for Hardeep, she was diagnosed quickly and began her treatments immediately. The earlier lymphedema is diagnosed, the easier it is to manage.

MANAGING HER LYMPHEDEMA

As a child, her treatment included using a lymphedema compression pump and wearing compression garments on her hand and arm. Over the years, her routine has stayed the same, except for using the pump more often. She has also tried introducing bandaging into her routine but finds consistency challenging.

“I had a difficult time dealing with lymphedema as a young child, into my teens and well into adulthood,” Hardeep says. Each phase of life seemed to present new challenges for living with lymphedema. Although each stage held its challenges, she has come to an acceptance of her disease. Hardeep is now determined to live her life regardless of her obstacles.

She is also looking into the possibility of surgery for her primary lymphedema. She has only seen one surgeon, who told her she was not a good candidate for surgery. However, she is not giving up and continuing her journey in hopes of finding a surgeon who can help.

REACHING OUT!

“I have enjoyed connecting with other lymphies through Instagram. It has had such a positive impact on me.” The most significant benefit is that she no longer feels alone. Hardeep feels understood, and that has built up her self-confidence. She has found great value in the lymphedema community.

Hardeep has such an uplifting and positive attitude. Despite all her obstacles, Hardeep focuses on all there is for her to be grateful for. When she starts feeling down, she reminds herself how lucky she is. The one thing she has done to help make her life easier dealing with lymphedema is to have a routine and stick with it. Hardeep always tries to see the glass half full despite all her challenges.

To learn more and follow Hardeep on Instagram, check out her profile @hardeep_k. She has a lovely page full of inspiration and support.

Reach out ~ You are not alone!

Disclaimer – This blog is for general information purposes only. Furthermore, the information contained in this blog is not a substitute for medical advice – always consult a licensed healthcare professional for advice on your specific condition.